Executive Summary
Why Phase 2 Is Needed
All Things PG (ATPG) established an early online presence in September 2025 by releasing www.allthingspg.org. This fulfilled an urgent need to quickly establish a PG Foundation and begin our work of raising PG awareness. The website created immediate visibility for ATPG as a nonprofit organization, gave us credibility within the rare-disease community, and provided needed informational support to people affected by Pyoderma Gangrenosum (PG). The current website has been well received asan attractive website that creates and illustrates our branding and offers PG information to patients and caregivers, features such as surveys, newsletters, and the Clinic Finder and more.
Phase 1 was built with a custom cms editing tool that supports all the features the editing tool was designed to proovide, including add/edit of web pages, surveys, newsletters, providers, news and events, and Board Members with biographies. It can manage news articles and the list of providers available in the Clinic Finder. We can add and change many things, but again, only ever what the tool allows. There ae definite advantages of using an editing tool like this for Phase 1, but there are also disadvantages when it comes to Phase 2. We will discuss those.
A Year of Growth
ATPG celebrated its first anniversary on July 7, 2026, after a year of remarkable growth. Board members have engaged in research with medical professionals, clinical trials with pharmaceutical companies, drug-development activities with the FDA, conferences, industry and rare-disease associations, education and advocacy, PFAC activities, newsletters, and fundraisers. Every Board member should be proud of these achievements and of the work we have done together. The Phase 1 website may be static, but the organization is not.
The website must support both sides of ATPG’s work: helping people find PG information and care, and sharing the Foundation’s activities and efforts to raise PG awareness. Our visitors include patients, caregivers, medical professionals, pharmaceutical partners, and guests. As the organization grows, the website must be able to grow with it.
Phase 1 was created at the beginning of our journey, before this year’s growth and before the 2026 Leo Grant identified additional website requirements. Those requirements include a searchable educational content library for patients and providers, and a searchable Clinic/Provider Finder. The existing CMS and editing tool cannot add those capabilities within the Phase 1 framework.
The Core of Phase 2
The Knowledge Base (KB) will bring together curated information about PG and related needs, including early diagnosis, treatment, pain management, wound care, dermatology, rheumatology, research, and patient and caregiver resources. People should be able to describe what they need in everyday language and find relevant articles and FAQs. The quality of KB results will depend on how much relevant information we discover, review, and add to the database.
The Clinic Finder (CF) will help people find relevant care and facilities. Visitors can narrow results by categories such as providers, wound-care centers, medical universities, mental-health facilities, and rehabilitation centers. Information about a provider’s PG experience can be recorded and grow over time; it does not have to be a condition for appearing in results.
These two capabilities are a major change in how people use the website: moving from browsing a limited set of static information to searching a growing source of information and care options. The site’s content can also reflect ATPG’s research, PFAC, outreach, and awareness activities.
The Database Foundation
A database is central to Phase 2. It provides the foundation for the Knowledge Base and expanded Clinic Finder, and many other areas of expansion. Over time, we can add things like patient success stories, a video library, a media library, helplines, PFAC activities with sign-ups (if needed). As ATPG’s needs evolve, a database allows us to build out these new capabilities that might serve the PG Community. A database is designed for growth, without any limitations. This kind of continued growth is not possible within the Phase 1 framework.
Summary
Consider a caregiver whose husband has just been diagnosed with PG. She may ask, “How can I help my husband deal with the pain?” A searchable Knowledge Base can retrieve content from the database and return a list of relevant articles and FAQs to help address her particular question, and her particular needs. The new Clinic Finder will filter on Facility Type, or Provider Type. Our caregiver can search the Clinic Finder, set the category, and only see Pain Management clinics nearby. Our website didn’t just present static information on a single page. Instead, our website now provides answers to her question and solved the problem she was having. She now knows how to help her husband deal the pain!
Of course, the quality of those results depends on the content within, which will continuously grow over time as we curate new content. Now our website is offering solutions, not just information.
The goal of All Things PG is to be all things to all those affected by Pyoderma Gangrenosum, and to raise PG awareness. We need to offer more than information people might find through a Google or AI search. We want to provide trusted, curated resources that help people find solutions, while also sharing the Foundation’s work with all the audiences we serve. We want to be All Things PG.
Thank you.
Dave DePottie
Chairman and IT Director
All Things PG
About the Developer